Posts

Showing posts from 2019

FINALLY HOME!!!

So I was finally released from the hospital on Thursday. Being in the hospital for 6 days was the most taxing experience of my life. The surgery itself went very well. The DR (which is the most amazing doctor on earth) did an amazing job. She really focused on my problem areas without removing an excessive amount of skin. The wounds are left open, meant to heal from the inside out. Once fully healed, it will be scarred skin, but the HS will not come back into those areas any longer!!!!!!!! The areas I had done were the biggest problem areas for me....that being the groin, thigh, and buttocks area. As you can imagine these areas are sensitive AF, and not easy to deal with post-op for a variety of reasons (think pee/poop). Friday and Saturday were ok. Painful as fuck, but I was managing with the help of Norco (which eventually got bumped up to Percocet because......well duh). Sunday was by far the WORST day of my life. When I went to use the restroom, I sat down on the toilet as ...

Post-Op Magic

So I'm currently sitting in my bed at the hospital. It's day 5 post-op. It's so crazy to sit here knowing everything that has gone on in the last 5 days. I mean I did like almost die Sunday (not even joking in the slightest). But I guess an explanation is owed as to how I got here. What exactly brought me to the hospital bed. Hidradenitis Suppurativa. When I was about 15, I noticed these small bumps under my armpits. No idea what they were, I did what any rational being would do....I picked at them. Eventually the bumps grew larger and larger. At one point I remember one bursting and puss coming out. Disgusting right? Well of course I decided in that moment to keep this weird little "issue" of mine a secret. It was embarrassing to look at. I would wear long sleeve shirts so no one would see these bumps forming. As the bumps began to grow in size and number, I started to get worried. I remember going to my PTP and she said it was "body acne". I reme...

Timing. Pt 2

So my last post was about timing. How you should never doubt the timing of your life. Well the craziest and most random thing happened to me last week. I was out with my friend Sam at Panera.....which is OUR spot (something about that Plum Ginger Hibiscus tea gets me). While sitting on the patio, I noticed a man get off the bus in the middle of the street. Carrying papers.  A huge stack of them. White. Yellow. Pink. Then I saw it....the wrist band. That's when I realized this guy was probably just released from a hospital. Anyone that knows me knows I'm vigilant. I can spot anyone at any time. I'm always mindful of my surroundings.....and I knew it was a matter of time before I came into contact with this man. He walked up to our seating area, but not up to Sam and I......which I honestly thought he was going to. A minute or two later, a man and woman exited the Panera. He walked up to them and asked to use their phone. I couldn't hear much of their conversation, ...

Timing........is everything.

Life has been moving people. Just moving right along. Pretty fucking quickly if you ask me. Like HOW are we already in the middle of March?!!? I've been so busy lately. I find myself struggling in my attempt to stay up to speed with the rate my life has been moving lately. Just to update....I've finally been cleared to see a surgeon regarding my HS (that autoimmune condition I was diagnosed with a while back). Apparently I've reached stage 3 and the only option now would be surgery......which is both exciting AND terrifying. I see her this week so I'll know more of what I'm looking at moving forward then. To be clear - Stage 3 doesn't mean I'm dying or anything. It just means every round of treatment has failed and the condition continues to get worse.....meaning I'm going to need surgery to remove all sections of affected/scarred skin in hopes of reducing the amount of flare ups I'm experiencing. I've also started a medication change. Lith...